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Development of a gastroschisis core outcome set

ObjectiveOutcome reporting heterogeneity impedes identification of gold standard treatments for children born with gastroschisis. Use of core outcome sets (COSs) in research reduces outcome reporting heterogeneity and ensures that studies are relevant to patients. The aim of this study was to develo... Full description

Journal Title: Archives of Disease in Childhood 2019-01, Vol.104 (1), p.F76-F82
Main Author: Allin, Benjamin Saul Raywood
Other Authors: Hall, Nigel J , Ross, Andrew R , Marven, Sean S , Kurinczuk, Jennifer J , Knight, Marian
Format: Electronic Article Electronic Article
Language: English
Subjects:
Publisher: England: BMJ Publishing Group LTD
ID: ISSN: 1359-2998
Link: https://www.ncbi.nlm.nih.gov/pubmed/29540463
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recordid: cdi_proquest_miscellaneous_2014141989
title: Development of a gastroschisis core outcome set
format: Article
creator:
  • Allin, Benjamin Saul Raywood
  • Hall, Nigel J
  • Ross, Andrew R
  • Marven, Sean S
  • Kurinczuk, Jennifer J
  • Knight, Marian
subjects:
  • Abridged Index Medicus
  • Children & youth
  • Clinical medicine
  • core outcome sets
  • Delphi Technique
  • Epidemiology
  • Gastrointestinal Diseases - etiology
  • gastroschisis
  • Gastroschisis - complications
  • Hospitals
  • Humans
  • Liver Diseases - etiology
  • Original Article
  • Outcome and Process Assessment, Health Care - organization & administration
  • Outcome and Process Assessment, Health Care - standards
  • paediatric surgery
  • Parenteral Nutrition - statistics & numerical data
  • Pediatrics
  • Quality of Life
  • Research Design
  • Sepsis - etiology
  • Stakeholders
  • Success
  • Surgeons
  • Surgical Procedures, Operative - statistics & numerical data
  • Systematic review
  • Web sites
ispartof: Archives of Disease in Childhood, 2019-01, Vol.104 (1), p.F76-F82
description: ObjectiveOutcome reporting heterogeneity impedes identification of gold standard treatments for children born with gastroschisis. Use of core outcome sets (COSs) in research reduces outcome reporting heterogeneity and ensures that studies are relevant to patients. The aim of this study was to develop a gastroschisis COS.Design and settingSystematic reviews and stakeholder nomination were used to identify candidate outcomes that were subsequently prioritised by key stakeholders in a three-phase online Delphi process and face-to-face consensus meeting using a 9-point Likert scale. In phases two and three of the Delphi process, participants were shown graphical and numerical representations of their own, and all panels scores for each outcome respectively and asked to review their previous score in light of this information. Outcomes were carried forward to the consensus meeting if prioritised by two or three stakeholder panels in the third phase of the Delphi process. The COS was formed from outcomes where ≥70% of consensus meeting participants scored the outcome 7–9 and
language: eng
source:
identifier: ISSN: 1359-2998
fulltext: no_fulltext
issn:
  • 1359-2998
  • 0003-9888
  • 1468-2052
  • 1468-2044
url: Link


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titleDevelopment of a gastroschisis core outcome set
creatorAllin, Benjamin Saul Raywood ; Hall, Nigel J ; Ross, Andrew R ; Marven, Sean S ; Kurinczuk, Jennifer J ; Knight, Marian
creatorcontribAllin, Benjamin Saul Raywood ; Hall, Nigel J ; Ross, Andrew R ; Marven, Sean S ; Kurinczuk, Jennifer J ; Knight, Marian ; NETS1G collaboration
descriptionObjectiveOutcome reporting heterogeneity impedes identification of gold standard treatments for children born with gastroschisis. Use of core outcome sets (COSs) in research reduces outcome reporting heterogeneity and ensures that studies are relevant to patients. The aim of this study was to develop a gastroschisis COS.Design and settingSystematic reviews and stakeholder nomination were used to identify candidate outcomes that were subsequently prioritised by key stakeholders in a three-phase online Delphi process and face-to-face consensus meeting using a 9-point Likert scale. In phases two and three of the Delphi process, participants were shown graphical and numerical representations of their own, and all panels scores for each outcome respectively and asked to review their previous score in light of this information. Outcomes were carried forward to the consensus meeting if prioritised by two or three stakeholder panels in the third phase of the Delphi process. The COS was formed from outcomes where ≥70% of consensus meeting participants scored the outcome 7–9 and <15% of participants scored it 1–3.Results71 participants (84%) completed all phases of the Delphi process, during which 87 outcomes were assessed. Eight outcomes, mortality, sepsis, growth, number of operations, severe gastrointestinal complication, time on parenteral nutrition, liver disease and quality of life for the child, met criteria for inclusion in the COS.ConclusionsEight outcomes have been included in the gastroschisis COS as a result of their importance to key stakeholders. Implementing use of the COS will increase the potential for identification of gold standard treatments for the management of children born with gastroschisis.
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subjectAbridged Index Medicus ; Children & youth ; Clinical medicine ; core outcome sets ; Delphi Technique ; Epidemiology ; Gastrointestinal Diseases - etiology ; gastroschisis ; Gastroschisis - complications ; Hospitals ; Humans ; Liver Diseases - etiology ; Original Article ; Outcome and Process Assessment, Health Care - organization & administration ; Outcome and Process Assessment, Health Care - standards ; paediatric surgery ; Parenteral Nutrition - statistics & numerical data ; Pediatrics ; Quality of Life ; Research Design ; Sepsis - etiology ; Stakeholders ; Success ; Surgeons ; Surgical Procedures, Operative - statistics & numerical data ; Systematic review ; Web sites
ispartofArchives of Disease in Childhood, 2019-01, Vol.104 (1), p.F76-F82
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descriptionObjectiveOutcome reporting heterogeneity impedes identification of gold standard treatments for children born with gastroschisis. Use of core outcome sets (COSs) in research reduces outcome reporting heterogeneity and ensures that studies are relevant to patients. The aim of this study was to develop a gastroschisis COS.Design and settingSystematic reviews and stakeholder nomination were used to identify candidate outcomes that were subsequently prioritised by key stakeholders in a three-phase online Delphi process and face-to-face consensus meeting using a 9-point Likert scale. In phases two and three of the Delphi process, participants were shown graphical and numerical representations of their own, and all panels scores for each outcome respectively and asked to review their previous score in light of this information. Outcomes were carried forward to the consensus meeting if prioritised by two or three stakeholder panels in the third phase of the Delphi process. The COS was formed from outcomes where ≥70% of consensus meeting participants scored the outcome 7–9 and <15% of participants scored it 1–3.Results71 participants (84%) completed all phases of the Delphi process, during which 87 outcomes were assessed. Eight outcomes, mortality, sepsis, growth, number of operations, severe gastrointestinal complication, time on parenteral nutrition, liver disease and quality of life for the child, met criteria for inclusion in the COS.ConclusionsEight outcomes have been included in the gastroschisis COS as a result of their importance to key stakeholders. Implementing use of the COS will increase the potential for identification of gold standard treatments for the management of children born with gastroschisis.
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abstractObjectiveOutcome reporting heterogeneity impedes identification of gold standard treatments for children born with gastroschisis. Use of core outcome sets (COSs) in research reduces outcome reporting heterogeneity and ensures that studies are relevant to patients. The aim of this study was to develop a gastroschisis COS.Design and settingSystematic reviews and stakeholder nomination were used to identify candidate outcomes that were subsequently prioritised by key stakeholders in a three-phase online Delphi process and face-to-face consensus meeting using a 9-point Likert scale. In phases two and three of the Delphi process, participants were shown graphical and numerical representations of their own, and all panels scores for each outcome respectively and asked to review their previous score in light of this information. Outcomes were carried forward to the consensus meeting if prioritised by two or three stakeholder panels in the third phase of the Delphi process. The COS was formed from outcomes where ≥70% of consensus meeting participants scored the outcome 7–9 and <15% of participants scored it 1–3.Results71 participants (84%) completed all phases of the Delphi process, during which 87 outcomes were assessed. Eight outcomes, mortality, sepsis, growth, number of operations, severe gastrointestinal complication, time on parenteral nutrition, liver disease and quality of life for the child, met criteria for inclusion in the COS.ConclusionsEight outcomes have been included in the gastroschisis COS as a result of their importance to key stakeholders. Implementing use of the COS will increase the potential for identification of gold standard treatments for the management of children born with gastroschisis.
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