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recordid: cdi_proquest_miscellaneous_758131527
title: Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium
format: Article
creator:
  • Clayton, Ellen Wright
  • Smith, Maureen
  • Fullerton, Stephanie M.
  • Burke, Wylie
  • McCarty, Catherine A.
  • Koenig, Barbara A.
  • McGuire, Amy L.
  • Beskow, Laura M.
  • Dressler, Lynn
  • Lemke, Amy A.
  • Ramos, Erin M.
  • Rodriguez, Laura Lyman
subjects:
  • Community-Based Participatory Research
  • Confidentiality - ethics
  • Confidentiality - legislation & jurisprudence
  • Electronic Health Records - ethics
  • Electronic Health Records - legislation & jurisprudence
  • Ethics Committees, Research
  • Ethics, Medical
  • Genetic Research - ethics
  • Genetic Research - legislation & jurisprudence
  • Genome-Wide Association Study - ethics
  • Genome-Wide Association Study - methods
  • Genomics - ethics
  • Genomics - legislation & jurisprudence
  • Humans
  • Information Dissemination
  • Informed Consent
  • Interinstitutional Relations
  • National Human Genome Research Institute (U.S.)
  • National Institutes of Health (U.S.)
  • Physician-Patient Relations - ethics
  • Research Design
  • United States
ispartof: Genetics in medicine, 2010-10, Vol.12 (10), p.616-620
description:
language: eng
source:
identifier: ISSN: 1098-3600
fulltext: no_fulltext
issn:
  • 1098-3600
  • 1530-0366
url: Link


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titleConfronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium
creatorClayton, Ellen Wright ; Smith, Maureen ; Fullerton, Stephanie M. ; Burke, Wylie ; McCarty, Catherine A. ; Koenig, Barbara A. ; McGuire, Amy L. ; Beskow, Laura M. ; Dressler, Lynn ; Lemke, Amy A. ; Ramos, Erin M. ; Rodriguez, Laura Lyman
creatorcontribClayton, Ellen Wright ; Smith, Maureen ; Fullerton, Stephanie M. ; Burke, Wylie ; McCarty, Catherine A. ; Koenig, Barbara A. ; McGuire, Amy L. ; Beskow, Laura M. ; Dressler, Lynn ; Lemke, Amy A. ; Ramos, Erin M. ; Rodriguez, Laura Lyman ; for the Consent and Community Consultation Working Group of the eMERGE Consortium ; Consent and Community Consultation Working Group of the eMERGE Consortium
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languageeng
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subjectCommunity-Based Participatory Research ; Confidentiality - ethics ; Confidentiality - legislation & jurisprudence ; Electronic Health Records - ethics ; Electronic Health Records - legislation & jurisprudence ; Ethics Committees, Research ; Ethics, Medical ; Genetic Research - ethics ; Genetic Research - legislation & jurisprudence ; Genome-Wide Association Study - ethics ; Genome-Wide Association Study - methods ; Genomics - ethics ; Genomics - legislation & jurisprudence ; Humans ; Information Dissemination ; Informed Consent ; Interinstitutional Relations ; National Human Genome Research Institute (U.S.) ; National Institutes of Health (U.S.) ; Physician-Patient Relations - ethics ; Research Design ; United States
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10Ramos, Erin M.
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0Community-Based Participatory Research
1Confidentiality - ethics
2Confidentiality - legislation & jurisprudence
3Electronic Health Records - ethics
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5Ethics Committees, Research
6Ethics, Medical
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12Genomics - legislation & jurisprudence
13Humans
14Information Dissemination
15Informed Consent
16Interinstitutional Relations
17National Human Genome Research Institute (U.S.)
18National Institutes of Health (U.S.)
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20Research Design
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3Burke, Wylie
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6McGuire, Amy L.
7Beskow, Laura M.
8Dressler, Lynn
9Lemke, Amy A.
10Ramos, Erin M.
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titleConfronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium
authorClayton, Ellen Wright ; Smith, Maureen ; Fullerton, Stephanie M. ; Burke, Wylie ; McCarty, Catherine A. ; Koenig, Barbara A. ; McGuire, Amy L. ; Beskow, Laura M. ; Dressler, Lynn ; Lemke, Amy A. ; Ramos, Erin M. ; Rodriguez, Laura Lyman
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1Confidentiality - ethics
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3Electronic Health Records - ethics
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5Ethics Committees, Research
6Ethics, Medical
7Genetic Research - ethics
8Genetic Research - legislation & jurisprudence
9Genome-Wide Association Study - ethics
10Genome-Wide Association Study - methods
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12Genomics - legislation & jurisprudence
13Humans
14Information Dissemination
15Informed Consent
16Interinstitutional Relations
17National Human Genome Research Institute (U.S.)
18National Institutes of Health (U.S.)
19Physician-Patient Relations - ethics
20Research Design
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