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Acceptance or Despair? Maternal Adjustment to Having a Child Diagnosed with Autism

Psychological adjustment to having one’s child diagnosed with an autism spectrum disorder has important implications for a parent’s mental health. In a longitudinal study, we examined the association between maternal adjustment to the diagnosis and measures of distress and well-being in 90 mothers o... Full description

Journal Title: Journal of autism and developmental disorders 2018-01-06, Vol.48 (6), p.1971-1981
Main Author: Da Paz, Nikko S
Other Authors: Siegel, Bryna , Coccia, Michael A , Epel, Elissa S
Format: Electronic Article Electronic Article
Language: English
Subjects:
Publisher: New York: Springer US
ID: ISSN: 0162-3257
Link: https://www.ncbi.nlm.nih.gov/pubmed/29307036
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recordid: cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_6347022
title: Acceptance or Despair? Maternal Adjustment to Having a Child Diagnosed with Autism
format: Article
creator:
  • Da Paz, Nikko S
  • Siegel, Bryna
  • Coccia, Michael A
  • Epel, Elissa S
subjects:
  • Acceptance
  • adaptive adjustment
  • Adjustment
  • Adult
  • Article
  • Autism
  • Autism Spectrum Disorder - diagnosis
  • Autism Spectrum Disorder - psychology
  • autism spectrum disorders
  • Autistic children
  • Behavior - physiology
  • Behavioral Science and Psychology
  • Blame
  • Caregivers
  • Caregivers - psychology
  • Child
  • Child and School Psychology
  • Child, Preschool
  • Children
  • depression
  • Depression - diagnosis
  • Depression - psychology
  • Despair
  • Diagnosis
  • Emotional Adjustment - physiology
  • Factor analysis
  • Female
  • Health aspects
  • Humans
  • Influence
  • Life satisfaction
  • Longitudinal Studies
  • Male
  • Medical diagnosis
  • Mental depression
  • Mental disorders
  • Mental health
  • Mother and child
  • Mother-Child Relations - psychology
  • Mothers
  • Mothers - psychology
  • Neurosciences
  • Original Paper
  • Pediatrics
  • Personal Satisfaction
  • Pervasive developmental disorders
  • Psychological distress
  • Psychology
  • Public Health
  • Quality of life
  • Selfblame
  • Social aspects
  • stress
  • Stress, Psychological - diagnosis
  • Stress, Psychological - psychology
  • Surveys and Questionnaires
  • Well being
ispartof: Journal of autism and developmental disorders, 2018-01-06, Vol.48 (6), p.1971-1981
description: Psychological adjustment to having one’s child diagnosed with an autism spectrum disorder has important implications for a parent’s mental health. In a longitudinal study, we examined the association between maternal adjustment to the diagnosis and measures of distress and well-being in 90 mothers of children with autism (baseline and 18 months). We used a novel 30-item scale “Adjustment to the Diagnosis of Autism.” Factor analysis identified three dimensions of adjustment: acceptance, self-blame, and despair. Acceptance appeared to be a protective response, as it was associated with lower depressive symptoms, cross-sectionally and over time. Conversely, caregivers with increasing levels of self-blame and despair about the diagnosis over 18 months had worsening of mental health and satisfaction with life during this period.
language: eng
source:
identifier: ISSN: 0162-3257
fulltext: no_fulltext
issn:
  • 0162-3257
  • 1573-3432
url: Link


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descriptionPsychological adjustment to having one’s child diagnosed with an autism spectrum disorder has important implications for a parent’s mental health. In a longitudinal study, we examined the association between maternal adjustment to the diagnosis and measures of distress and well-being in 90 mothers of children with autism (baseline and 18 months). We used a novel 30-item scale “Adjustment to the Diagnosis of Autism.” Factor analysis identified three dimensions of adjustment: acceptance, self-blame, and despair. Acceptance appeared to be a protective response, as it was associated with lower depressive symptoms, cross-sectionally and over time. Conversely, caregivers with increasing levels of self-blame and despair about the diagnosis over 18 months had worsening of mental health and satisfaction with life during this period.
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subjectAcceptance ; adaptive adjustment ; Adjustment ; Adult ; Article ; Autism ; Autism Spectrum Disorder - diagnosis ; Autism Spectrum Disorder - psychology ; autism spectrum disorders ; Autistic children ; Behavior - physiology ; Behavioral Science and Psychology ; Blame ; Caregivers ; Caregivers - psychology ; Child ; Child and School Psychology ; Child, Preschool ; Children ; depression ; Depression - diagnosis ; Depression - psychology ; Despair ; Diagnosis ; Emotional Adjustment - physiology ; Factor analysis ; Female ; Health aspects ; Humans ; Influence ; Life satisfaction ; Longitudinal Studies ; Male ; Medical diagnosis ; Mental depression ; Mental disorders ; Mental health ; Mother and child ; Mother-Child Relations - psychology ; Mothers ; Mothers - psychology ; Neurosciences ; Original Paper ; Pediatrics ; Personal Satisfaction ; Pervasive developmental disorders ; Psychological distress ; Psychology ; Public Health ; Quality of life ; Selfblame ; Social aspects ; stress ; Stress, Psychological - diagnosis ; Stress, Psychological - psychology ; Surveys and Questionnaires ; Well being
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27Health aspects
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titleAcceptance or Despair? Maternal Adjustment to Having a Child Diagnosed with Autism
authorDa Paz, Nikko S ; Siegel, Bryna ; Coccia, Michael A ; Epel, Elissa S
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44Personal Satisfaction
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jtitleJournal of autism and developmental disorders
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1Siegel, Bryna
2Coccia, Michael A
3Epel, Elissa S
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atitleAcceptance or Despair? Maternal Adjustment to Having a Child Diagnosed with Autism
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notes
0Author Note
1Nikko S. Da Paz, Michael A. Coccia, and Elissa S. Epel, Health Psychology, Center for Health and Community, University of California, San Francisco. Bryna Siegel, Autism Center of Northern California.
abstractPsychological adjustment to having one’s child diagnosed with an autism spectrum disorder has important implications for a parent’s mental health. In a longitudinal study, we examined the association between maternal adjustment to the diagnosis and measures of distress and well-being in 90 mothers of children with autism (baseline and 18 months). We used a novel 30-item scale “Adjustment to the Diagnosis of Autism.” Factor analysis identified three dimensions of adjustment: acceptance, self-blame, and despair. Acceptance appeared to be a protective response, as it was associated with lower depressive symptoms, cross-sectionally and over time. Conversely, caregivers with increasing levels of self-blame and despair about the diagnosis over 18 months had worsening of mental health and satisfaction with life during this period.
copNew York
pubSpringer US
pmid29307036
doi10.1007/s10803-017-3450-4
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