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A Systematic Network of Autism Primary Care Services (SYNAPSE): A Model of Coproduction for the Management of Autism Spectrum Disorder

The prevalence of Autism Spectrum Disorder (ASD) is growing rapidly, affecting 1 in 59 children in the United States in 2018. Individuals with ASD currently receive fragmented care that threatens their health and well-being. Challenges of autism care include disconnections between the medical system... Full description

Journal Title: Journal of autism and developmental disorders 2019-02-21, Vol.50 (5), p.1847-1853
Main Author: Kong, Xuejun
Other Authors: Liu, Jun , Chien, Tiffany , Batalden, Maren , Hirsh, David A
Format: Electronic Article Electronic Article
Language: English
Subjects:
Publisher: New York: Springer US
ID: ISSN: 0162-3257
Link: https://www.ncbi.nlm.nih.gov/pubmed/30790194
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recordid: cdi_springer_journals_10_1007_s10803_019_03922_4
title: A Systematic Network of Autism Primary Care Services (SYNAPSE): A Model of Coproduction for the Management of Autism Spectrum Disorder
format: Article
creator:
  • Kong, Xuejun
  • Liu, Jun
  • Chien, Tiffany
  • Batalden, Maren
  • Hirsh, David A
subjects:
  • Autism
  • Autistic children
  • Behavioral Science and Psychology
  • Care and treatment
  • Child and School Psychology
  • Children
  • Chronic illnesses
  • Clinical practice
  • Commentary
  • Coordination
  • Disease management
  • Forecasts and trends
  • Management
  • Mental disorders
  • Mental health
  • Models
  • Neuropsychiatry
  • Neurosciences
  • Patients
  • Pediatrics
  • Pervasive developmental disorders
  • Policy making
  • Primary care
  • Primary health care
  • Psychology
  • Public Health
  • Saturation
  • Specialists
  • Well being
ispartof: Journal of autism and developmental disorders, 2019-02-21, Vol.50 (5), p.1847-1853
description: The prevalence of Autism Spectrum Disorder (ASD) is growing rapidly, affecting 1 in 59 children in the United States in 2018. Individuals with ASD currently receive fragmented care that threatens their health and well-being. Challenges of autism care include disconnections between the medical system and school supports, poor care coordination between primary care and specialists, and saturation of neuropsychiatry-based centers’ capacity to care for the ASD population. ASD treatment also lacks of a coordinated system of care for patients’ multi-system comorbidities. Families are calling for an ASD care delivery system to meet their needs and the needs of their children. To serve people with ASD and their medical and other providers, we propose a coordinated approach to care grounded in primary care. We call the model the “Systematic Network of Autism Primary Care Services (SYNAPSE).” We develop the model by applying the frameworks of “coproduction” of care and chronic disease management. In this Commentary we discuss the model’s rationale, underpinnings, and the implications for clinical practice. We advance these ideas to align with policy makers’ recognition of the importance of primary care for ASD, as reflected by the most recent Interagency Autism Coordinating Committee (IACC) meeting at the National Institute of Mental Health.
language: eng
source:
identifier: ISSN: 0162-3257
fulltext: no_fulltext
issn:
  • 0162-3257
  • 1573-3432
url: Link


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descriptionThe prevalence of Autism Spectrum Disorder (ASD) is growing rapidly, affecting 1 in 59 children in the United States in 2018. Individuals with ASD currently receive fragmented care that threatens their health and well-being. Challenges of autism care include disconnections between the medical system and school supports, poor care coordination between primary care and specialists, and saturation of neuropsychiatry-based centers’ capacity to care for the ASD population. ASD treatment also lacks of a coordinated system of care for patients’ multi-system comorbidities. Families are calling for an ASD care delivery system to meet their needs and the needs of their children. To serve people with ASD and their medical and other providers, we propose a coordinated approach to care grounded in primary care. We call the model the “Systematic Network of Autism Primary Care Services (SYNAPSE).” We develop the model by applying the frameworks of “coproduction” of care and chronic disease management. In this Commentary we discuss the model’s rationale, underpinnings, and the implications for clinical practice. We advance these ideas to align with policy makers’ recognition of the importance of primary care for ASD, as reflected by the most recent Interagency Autism Coordinating Committee (IACC) meeting at the National Institute of Mental Health.
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subjectAutism ; Autistic children ; Behavioral Science and Psychology ; Care and treatment ; Child and School Psychology ; Children ; Chronic illnesses ; Clinical practice ; Commentary ; Coordination ; Disease management ; Forecasts and trends ; Management ; Mental disorders ; Mental health ; Models ; Neuropsychiatry ; Neurosciences ; Patients ; Pediatrics ; Pervasive developmental disorders ; Policy making ; Primary care ; Primary health care ; Psychology ; Public Health ; Saturation ; Specialists ; Well being
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abstractThe prevalence of Autism Spectrum Disorder (ASD) is growing rapidly, affecting 1 in 59 children in the United States in 2018. Individuals with ASD currently receive fragmented care that threatens their health and well-being. Challenges of autism care include disconnections between the medical system and school supports, poor care coordination between primary care and specialists, and saturation of neuropsychiatry-based centers’ capacity to care for the ASD population. ASD treatment also lacks of a coordinated system of care for patients’ multi-system comorbidities. Families are calling for an ASD care delivery system to meet their needs and the needs of their children. To serve people with ASD and their medical and other providers, we propose a coordinated approach to care grounded in primary care. We call the model the “Systematic Network of Autism Primary Care Services (SYNAPSE).” We develop the model by applying the frameworks of “coproduction” of care and chronic disease management. In this Commentary we discuss the model’s rationale, underpinnings, and the implications for clinical practice. We advance these ideas to align with policy makers’ recognition of the importance of primary care for ASD, as reflected by the most recent Interagency Autism Coordinating Committee (IACC) meeting at the National Institute of Mental Health.
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