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Parents’ Perspectives About Adolescent Boys’ Involvement in Biomedical HIV Prevention Research

Research on the use of pre-exposure prophylaxis (PrEP) among adolescents at high risk for HIV is urgently needed, and parents’ perspectives on these studies are essential for guiding the responsible conduct of adolescent PrEP research. We conducted interviews with 30 parents of adolescent boys (50%... Full description

Journal Title: Archives of Sexual Behavior 2018, Vol.47(7), pp.1923-1935
Main Author: Mustanski, Brian
Other Authors: Macapagal, Kathryn , Thomann, Matthew , Feinstein, Brian , Newcomb, Michael , Motley, Darnell , Fisher, Celia
Format: Electronic Article Electronic Article
Language: English
Subjects:
ID: ISSN: 0004-0002 ; E-ISSN: 1573-2800 ; DOI: 10.1007/s10508-017-1035-0
Link: http://dx.doi.org/10.1007/s10508-017-1035-0
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recordid: springer_jour10.1007/s10508-017-1035-0
title: Parents’ Perspectives About Adolescent Boys’ Involvement in Biomedical HIV Prevention Research
format: Article
creator:
  • Mustanski, Brian
  • Macapagal, Kathryn
  • Thomann, Matthew
  • Feinstein, Brian
  • Newcomb, Michael
  • Motley, Darnell
  • Fisher, Celia
subjects:
  • HIV prevention
  • Pre-exposure prophylaxis
  • Parents
  • Adolescents
  • Men who have sex with men
ispartof: Archives of Sexual Behavior, 2018, Vol.47(7), pp.1923-1935
description: Research on the use of pre-exposure prophylaxis (PrEP) among adolescents at high risk for HIV is urgently needed, and parents’ perspectives on these studies are essential for guiding the responsible conduct of adolescent PrEP research. We conducted interviews with 30 parents of adolescent boys (50% known/presumed heterosexual; 50% sexual minority) to understand their views of research risks and benefits and parental permission regarding their son’s involvement in a hypothetical PrEP adherence trial. Parents identified several health and educational benefits of the study and expressed that waiving parental permission would overcome barriers to accessing PrEP, particularly for youth who may benefit most. Among their concerns were medication non-adherence and risk compensation. Parents provided suggestions to facilitate informed, rational, and voluntary participation decisions and protect youth’s safety if parental permission was waived. These findings can inform ways to increase parental trust in PrEP research and create adequate protections for adolescent participants.
language: eng
source:
identifier: ISSN: 0004-0002 ; E-ISSN: 1573-2800 ; DOI: 10.1007/s10508-017-1035-0
fulltext: fulltext
issn:
  • 1573-2800
  • 15732800
  • 0004-0002
  • 00040002
url: Link


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titleParents’ Perspectives About Adolescent Boys’ Involvement in Biomedical HIV Prevention Research
creatorMustanski, Brian ; Macapagal, Kathryn ; Thomann, Matthew ; Feinstein, Brian ; Newcomb, Michael ; Motley, Darnell ; Fisher, Celia
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subjectHIV prevention ; Pre-exposure prophylaxis ; Parents ; Adolescents ; Men who have sex with men
descriptionResearch on the use of pre-exposure prophylaxis (PrEP) among adolescents at high risk for HIV is urgently needed, and parents’ perspectives on these studies are essential for guiding the responsible conduct of adolescent PrEP research. We conducted interviews with 30 parents of adolescent boys (50% known/presumed heterosexual; 50% sexual minority) to understand their views of research risks and benefits and parental permission regarding their son’s involvement in a hypothetical PrEP adherence trial. Parents identified several health and educational benefits of the study and expressed that waiving parental permission would overcome barriers to accessing PrEP, particularly for youth who may benefit most. Among their concerns were medication non-adherence and risk compensation. Parents provided suggestions to facilitate informed, rational, and voluntary participation decisions and protect youth’s safety if parental permission was waived. These findings can inform ways to increase parental trust in PrEP research and create adequate protections for adolescent participants.
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titleParents’ Perspectives About Adolescent Boys’ Involvement in Biomedical HIV Prevention Research
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abstractResearch on the use of pre-exposure prophylaxis (PrEP) among adolescents at high risk for HIV is urgently needed, and parents’ perspectives on these studies are essential for guiding the responsible conduct of adolescent PrEP research. We conducted interviews with 30 parents of adolescent boys (50% known/presumed heterosexual; 50% sexual minority) to understand their views of research risks and benefits and parental permission regarding their son’s involvement in a hypothetical PrEP adherence trial. Parents identified several health and educational benefits of the study and expressed that waiving parental permission would overcome barriers to accessing PrEP, particularly for youth who may benefit most. Among their concerns were medication non-adherence and risk compensation. Parents provided suggestions to facilitate informed, rational, and voluntary participation decisions and protect youth’s safety if parental permission was waived. These findings can inform ways to increase parental trust in PrEP research and create adequate protections for adolescent participants.
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